Saturday, October 11, 2008

Shout Out about Diabetes

Discovery Health is looking for teens and young adults (maybe you?) to share with others what it's like to live with type 1 diabetes.

They'd like you to record a one-minute video that's a message to the next President. Tell them a little about your story and let them know how you'd like diabetes care to be improved. This is a great chance to really inform them as they take office.

If you want to get involved, please work quickly. According to the video entries are due by October 24th, though their web site says November 1st.



There's some more details here on the Discovery Health site. And you can submit your video on their Young Voices site.

Everyone will get a chance to vote for their top three choices and then they'll use that to pick the winners. I'll update this blog post as I learn more.

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Monday, July 07, 2008

Rise of Opinion leaders

I stumbled across the Pharma 2.0 blog recently after getting a Google News alert about a posting there.

Bunny's post is about the influence that certain key people (patient opinion leaders) have on others. In her post, she explains
These are individuals who are well-versed on their disease and are influencing thousands of others with their writing. I’m not saying that KOL’s (Key Opinion Leaders, usually refers to physicians) are on the wane, but industry should start paying more attention to this new generation of influencer.
She lists several well-known bloggers and me. I can't really think of myself as in the same league as the rest, so I'm grateful for the compliment.

I have to agree with her. For someone living with a chronic disease I'm much more influenced by what I learn from friends online and in real life. That's because their experiences are based on the tricks they've learned from managing this irritating condition.

Doctors and CDEs are important, however unless they also have diabetes they can only advise and guide based on the experience they've had in dealing with hundreds of patients and in their study and reading. I don't trivialize any of this, but living with the disease does give an empathy and connection that can't always be appreciated.

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