Transplant Information
I know, I know. It's been a long time since I last posted. I'm busy looking for a job and I seem to let anything else slide in the meantime.I came across the blog my new islets. The author Kathy had a pancreas transplant on August 23rd 2008 and is writing about the experience.
That made me realize that the Diabetes search engine wasn't looking at any sites that had information on pancreas transplants. So I spent some time this evening fixing that, and I've added over 20 sites with information about pancreas, or kidney/pancreas, transplants. Many of these are hospitals that have transplant programs.
Since we're going into summer planning. I also added a large number of diabetes camp sites. I was fortunate to get to most of these by using the Children with Diabetes Camps page.
The diabetes search engine now looks for diabetes information on over 1400 sites or pages, including over 450 diabetes related blogs. I have looked at each one before adding it, to make sure they're valid. It's been used over 10,000 times, which means that it now ranks in the Google directories. And it's raised over $150 to support Dr. Faustman's research into a type 1 cure.
Let me know of any ways I can improve this tool for you.
Labels: camps, diabetes, search, transplant
posted by Bernard @ 10:26 PM
5 Comments:
Don't sweat about not posting; I've been busy moving into a new place and have also been quiet as far as postings lately. As for pancreas transplants, I would also suggest a few others you might consider adding to the Diabetes Search Engine. The listing include Diabetes Institute for Immunology and Transplantation at the University of Minnesota (http://www.diabetesinstitute.org/), Information About Getting a Pancreas Transplant from the National Kidney Foundation (http://www.kidney.org/atoz/atozItem.cfm?id=162), The International Pancreas and Islet Transplant Association (http://www.ipita.org/), and the United Network for Organ Sharing a.k.a. "UNOS" (http://www.unos.org/). All of these are courtesy of Deb Butterfield, who was a very passionate advocate for pancreas transplantation (and these days finds herself again on the waiting list, as her own transplanted pancreas failed about a year ago), but the main reason is that these are very credible resources and should probably be included in your search engine's listings but I did not find them among your listings.
Thanks Scott, I hope your move is going well.
You're correct, they weren't in the engine. But they are now.
Say hi to Deb for me. That one and only time I met her was in DC before her transplant. That was in the 90s I think.
Just a not to say thanks for doing the things that you do.
Echoing Khurt's sentiments, I too appreciate all that you do for us Bernard!
Looking forward to getting to your coast of the country one of these days!
Hello Scott, You should not only look at pancreas transplants but also at Islet Cell Transplants. I had one and it has completely changed my life for the better.
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