Launching the Diabetes Data wiki
I've decided to get serious about some standard data formats for blood glucose data and insulin dosage data.So I've created a wiki as a collaboration tool.
I want to tackle the blood glucose data first.
What might this mean? Well here's the problem for those of us with diabetes.
How many diabetes data devices do you use? Glucose meters? Continuous glucose meters? Insulin pumps? Each of these typically collects some amount of data related to your diabetes treatment.
Have any of you got an easy way to collect this data into a single piece of software to that you can do some analysis on it?
Now imagine a future where all of the various pieces of software that come with your devices each exports the data in a common format. What might that mean?
If that format was shared and freely useable by anyone, then it allows different people to create software to collect the data and make logbooks out of it, or analyze it in different ways.
To get device makers to think about this, I've sent e-mails to various companies that are currently working on new blood glucose monitoring devices. Companies like Biosign Technologies who are developing a new wrist-worn monitor; and Nilimed who is working on a new continuous glucose monitor. I'm also trying to interest the Artificial Pancreas project in supporting standard data formats as part of that effort.
Would you like to get involved? If you've got any experience with programming, especially how to use XML and process XML, then you may be able to help.
Leave a comment, or send me an e-mail (mail address on the wiki), and I'll drop you a note.
posted by Bernard @ 9:41 AM
9 Comments:
Have you checked out swicki yet? I've 'assembled' mine but I've not been brave enough to put it on my blog yet.
Best wishes
More information is available at our webpage www.biosign.com (not www.biosigns.com)
Doesn't use IR or NIR but rather uses biosignals from the radial pulse.
The market for finger-stick glucometers is indeed a reported $5-7 Billion per year business and is reimbursed in the US.
The device is "pretty cool" - thanks for the interest.
Hope this helps.
Richard Potts, Chairman & CEO Biosign Technologies Inc.
Hi Bernard,
Thank you for taking time to leave such an encouraging comment at my place.
We're one week into our little Cameron's diagnosis now and with each day it becomes a little more real that this is his new life.
I wanted to assure you that we do indeed have a pediatric endocrinologist coming from Denver to meet with our daughter and her husband.
Thank you again and yes, the cure for this awful disease needs to be found now!
I wish I was smart enough to understand what I just read! LOL
Bernard,
This is my first post, and might I say BRAVO on an OUTSTANDING blog! :-) I'm so glad I stumbled upon it (it came up FIRST when I Googled DexCom).
Your thought for an EASY TO USE "one stop shop" for downloading a plethora of peripheral devices is spot on and much needed. Four years ago, I was delighted with Disetronic's InSight software that allowed downloads from many of the major glucose meters AND their D-Tron pumps... It's unfortunate that the D-Tron was SO plagued with issues. Now that I have a new Animas 2020 pump, I realize how many GREAT features my Disetronic DTron (now rebranded as AccuCheck) did NOT have...
Back to your WIKI: It is so labor intensive to assemble (in a useful format) downloads from an Animas 2020 (for all the great features this pump has, the IR software for this model still hasn't come out and, sadly, even when it DOES, data that could be OH-SO-VALUABLE (such as the info you key in to their EZCarb feature -- carbs & current glucose reading -- to figure your bolus) in troubleshooting trends can't be retrieved), a DexCom CGS (that I've had 3 weeks and LOVE LOVE LOVE), and an OneTouch Ultra (can no longer use my OneTouch Ultra II now that I'm using a Dexcom). I would be delighted if ALL that I had to manually enter in were my Symlin doses.
Currently, after uploading my One Touch Ultra (using One Touch's Diabetes Management Software), I manually have to enter carbs (on a bulky, frustrating system -- very few of the tabs are set to go to the "next field" correctly, it requires numerous unnecessary clicks to get to the next record, I eat at odd times so the forced meal times don't work for me, even though I can set the parameters myself) etc., then I manually have to enter in my boluses... There's no easy way to account for pump basals... etc., etc. After I've assembled all of the information, it is AMAZINGLY helpful, but the work involved GETTING there is so much more labor intensive than it should be.
So, YES! I am hopeful the DME companies out there are reading your blogs... There is certainly a need for this sort of thing!
Warm regards,
Kimberly
T1 for 14 years.
I am type I diabetic and of course I hope the device from Biosign will be available soon.
However I have somehow a very bad feeling.
I did a websearch for this device from Biosign and there are no independent opinions available, just 1 phone, and even no good description how the device should measure blood sugar. This is my private personal opionion.
Why is no patent pending ?
How many people are working for BioSign?
Why did they presented the device first time in Warzaw (Poland) in Europe?
The stock prize is rising sharply.
That is until now the only good news if you are invested.
It is good that you get direct feedback from the CEO Richard Potts, but the technical information is pretty low.
And the wepbpage is not much better!
Hope for the future...
Anonymous
I can't speak to whether the Biosigns stuff is real or not. And even if it is, that doesn't mean it will be on the market anytime soon.
I only pointed them out as one of a (large) number of companies that seem to be doing development of innovative diabetes devices.
From all the information available from the Biosign website, I think Biosign will be the first company to launch a commercial version of a non-invasive glucose meters. It looks like the company is looking for some strategic partners to commercialize the products. It looks very promising.
Read the April 2009 filing on CNQ from Biosign www.cnq.ca symbol bio and its at the bottom left. The non-invasive glucometer aspect of UFIT can now get approval from Health Canada for use by the public.
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