Talking with my endo(crinologist)
Tomorrow morning I'm meeting with my endo and a lot has changed since I saw her a few months ago.First of all, she's working at a new place which is a lot closer to work for me. That alone is exciting, especially when you're getting faster bloods drawn!
Secondly, since I last saw her the new 522 insulin pump was announced by Minimed. So I'll be taking along the Minimed coverage letter (PDF) that may help me to get coverage for the 'real-time' meter that works with the 522.
I also want to chat with her about the pros and cons of Symlin as a way to reduce those postprandial highs after meals.
And finally, I'll see whether I can get her to sponsor my bike ride supporting Dr. Denise Faustman's research for a Type 1 diabetes cure.
You can call me hopelessly optimistic (you wouldn't be the first), but I know they're closing in on a cure. If I can raise money that pays for a few months of research that might mean thirty times where I don't have to change my infusion set. Now that's a dream I'd pay for any day of the year.
I'll check in later and let you know what I find out about the 522 and Symlin.
posted by Bernard @ 9:29 PM
2 Comments:
I hope your appointment went well. What was the verdict on Symlin? I’m especially curious to find out what happened when you asked your endo to sponsor your bike ride.
And, I love that you’re “hopelessly optimistic” about a cure. Mostly because I’m not, and if all PWD were like me, what a dismal place we’d be in. We need people, like you, who believe and keep pushing so that...one day...there really will be a cure.
Hi Shell
So my endo gave me a sample of Symlin and we talked about how best to use it initially.
First dose that I took of it was at dinner yesterday (Saturday). I wanted to make sure I was at home when I started on it, because there are enough warnings about hypos and nausea to make it scary to even think about using.
Yesterday I'd been at a pool party with some of the children for a few hours. Given my consumption of hot dogs (sans rolls), and everything else it probably wasn't the best day to start in terms of overall BGs. However I did take an initial dose.
I'll write up all the details as a separate post. Let's just say that after 15-20 minutes I did have mild nausea. As I type this, there's still a trace of it around. It's bearable, so it won't put me off trying Symlin again this evening.
I talked with the endo about some other things including the bike ride. She let me put some cards on the waiting table, and she may sponsor me later. But whether she chooses to or not, that's fine with me. There are so many demands for people's money and time these days, that I don't mind whether folks support me. It wouldn't be fair.
I'll be starting my letter writing campaign soon to friends who don't have e-mail, and I'll probably include her if she's not supported me in the meantime.
Shell, I've had diabetes for almost 34 years. In that time I've been blessed with relatively few issues. The way I figure it, if God's taken me this far with it maybe He'll give me the pleasure of seeing it through to a cure. And if I get to directly support that cure by fund raising, wouldn't that be a great thing to tell my grand-children about.
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